I think this poem sums up life with PD pretty well –
I wake up tired before the day begins,
My body arguing with what I ask of it.
Hands hesitate, feet forget their rhythm,
And I move more carefully than I used to.
People say “stay strong,” and I try to,
Though strength feels different now.
Some days it’s just getting dressed,
Some days it’s letting myself be seen.
I feel like a burden when I slow the room,
Like my needing changes the air.
The world still waits for who I was,
While I learn how to be who I am.
I’m not hopeless — just lost at times,
Still here, still reaching in small ways.
If you walk beside me without fixing me,
That might be enough to help me stay
For more information about Parkinson’s disease (symptoms, diagnosis, and treatment), please visit this official website: